PKU Bread by hand

I have tested two pku bread recipes today. One using Fate All Purpose Flour and other using Loprofin Mix.


I normally make Keir’s sandwich bread using the breadmaker. Two reasons for this; firstly, it hardly creates any mess in the kitchen and secondly it is very quick. It is the most hassle free way to make a bread from scratch. The only downside of it is that it doesn’t have the best crust ( I might be being fussy), and the shape of the loaf is not very friendly for slicing. It is a tall bread rather than a long. So this morning, I made it my mission to try out a bread recipe by hand.

I made two batches of bread dough. First, I made a Fate Roll. The instructions in the book did seem overwhelming at first. It was very detailed. But there is a very good reason. The dough mix was very similar to cake mix so it was very sticky to handle and shape. Eileen gives a very handy tip by suggesting handling the dough using a flour coated cling film. This method works incredibly well, and the dough becomes manageable and mouldable. I made significant amount of sticky mess in the process but I was in control of the dough which is very important. I did not panic, it was a controlled mess. I used two sachets of yeast (I was given this tip by one of the chefs)  so the proofing didn’t take very long.

I then made another dough mix with Loprofin Mix for a brown bread loaf. Making the dough was extremely easy. I used hand mixer to combine all the ingredients. I again used two sachets of yeast and few droppings of gravy browning which is not in the original recipe. I greased the loaf tin and spooned out the dough mix into it. It was very simple. I then had my doubts, should I be smoothing the top or not. I decided to use a spoon and smooth it out as much as I could and brush the top with olive oil. I might have ruined the bread. I had to wait and see.

Both bread went into the oven at the same time and at same oven temperature. All cooked in 30 minutes. Both bread looked and tasted great. Keir couldn’t stop eating them. Success!



PKU Onion Bhaji and Naan bread

We decided to have a warming curry tonight as it is feeling a bit chilly. For Keir we had some frozen vegi curry, but decided to make some bhaji’s and naan bread to go along with it. We used Eileen Green’s recipes from her Fate cookbook using Fate all purpose flour. The recipes were really easy to follow. Keir helped with making all of this. He really enjoyed the mixing and the eating!

PKU Easter Eggs

Easter Time. Anticipated egg hunts, chocolate prizes are coming. I was very relaxed about it, thinking we will avoid chocolate maybe (false hope) as Keir is not so aware of chocolate yet. I then found out that Keir will be taking part in an Easter Egg Hunt at his nursery and chocolate prizes will be handed out. I quickly realised I needed to make some PKU chocolate eggs.

We attended our first NSPKU annual conference at the weekend (I will write about this in a separate post). Amazingly Vitaflo team handed out some chocolate eggs kits to the parents. How did they know?! 🙂


Ella and I made the chocolate eggs as soon as we could. It took 3 coats to get them into a nice shape. Sealing the egg halves to close was trickier than I imagined.  We found that pressing the edges of the egg halves into a dry heated pan melts the chocolate and gives it a nice straight edge to press together to close. It wasn’t a perfect smooth finish but all sealed well. We filled them with banana chips for a little bit of a rattly surprise and wrapped them in tissue paper and put them in the egg cases which we already had.



PKU Birthday Cake

Keir’s dad and big sister made him a lovely FATE sponge cake and decorated it with lots of strawberries and blueberries for his birthday. The cake was very light and fluffy considering it had no gluten. We spread good amount of strawberry jam between the two layers of the cake, then a little of Betty Crocker’s vanilla icing on top to hold the fruit in place.


Unfortunately his chickenpox was at its worst stage that day, he was very poorly for us to throw a birthday party for him. We had lots of cuddles instead. The cake and the birthday candles brightened his little face when we brought it out for him.

Birthday Suprise

Keir will be three on Tuesday (28th). We received a nice surprise from Nutricia in the post this week; a parcel with Keir’s name on it. Inside there was a birthday card, a recipe for a birthday cake and a packet of Loprofin Mix. What a lovely gesture! Thank you Nutricia for thinking of us!

My plan was to bake the cake today in case it failed. If I started today, I would have enough time to make few more attempts by Monday night. I have to confess I am not a great baker. I have not made many birthday cakes with success and never even attempted to decorate one so I was little apprehensive about making a low protein cake. It is like a double challenge bake for me.

This morning, as I was heading towards the kitchen to make a start, I heard my husband call over. He was changing Keir’s nappy. ‘Oh oh’ I thought. Poor Keir had blisters all over his nappy area. Shriek! Little I realised we had another surprise brewing up for his birthday. Chickenpox!  I’d better make his cake extra special.



PKU Blood Tests

Today I thought I would organise a box of things we need for taking Keir’s weekly blood test . It has been stored in an old shoe box which has started to fall apart.

We used to take blood from Keir once every other day and then when he was around 6 months old we have only needed to do it once a week. He used to have his blood taken from his heel and about 6 months ago we moved to his fingers. His dad does the blood test, I have not been brave enough to do it yet.  His daddy will ask which finger he would like him to take blood from and Keir will choose and point one . He does a very cute squint with his eyes but hardly ever cries. Brave brave soldier!


For keeping the blood test things, I used a clear box which we had bought from Ikea and found some animal theme stickers from one of their sticker books and stuck them on. He hasn’t seen it yet but I am sure he will be distracted for few minutes looking at these. I will let him decorate his box with some more stickers later.

Here’s the list of things we keep in here:


  1. Little plasters for little fingers
  2. Cotton wool to stop the bleeding
  3. Lancets for pricking his finger ( we have three different types in the box which we have used in different stages. We currently are  using the mushroom type – white with blue tip)
  4. NHS Guthrie Test Card (same as newborn heel prick card) and protective sleeves
  5. Brown envelope with lab’s address on
  6. Finally First Class stamps

We aimed to do his blood tests on Sundays and put them in the post for Monday. We usually get the results from the hospital via text message by Friday of that week. If his results are out of range then the dietitians will call us to discuss.