As Keir will be starting school in September, we have started conversations with his new school. Naturally, we are very nervous about management of his diet at school as he is very young and will need lots of help. The SEN co-coordinator of the school has arranged a meeting between us and the school chef. … Continue reading Talking to School about PKU
PKU and Camping at a Music Festival
We went to a music festival this weekend. Keir really enjoyed staying up pretty late to listen to the music. His preference is very clearly rock music! To make life as simple as possible we took food for him and had in our mind some substitutions if they were available from any of the food … Continue reading PKU and Camping at a Music Festival
Growing up
Keir has turned 4 earlier this year and he will be starting school in September. We have been busy trying to prepare for school. We met his school to discuss his condition and his PKU diet, and he had a preschool assesment at GOSH. I can't wait to choose his uniform with him, his first … Continue reading Growing up
PKU Meal Ideas for Schools, Restaurants, Family…
Although we have to heavily rely on the specialised low protein food to give Keir a well balanced diet, he can also enjoy some of the everyday foods freely. What I mean by everyday food is that the food you can purchase from supermarkets unlike low protein products which have to ordered through a prescription. When … Continue reading PKU Meal Ideas for Schools, Restaurants, Family…
PKU Low Protein Waffles
Waffles for breakfast! I announce. Keir says 'what?' 'Waffles, you will like them.' 'Huh?' he responds totaly puzzled. We picked up a sample pack of Taranis Low Protein Waffle mix at the NSPKU Conference and ever since have been searching for waffle plates to fit into our existing grill. Finally Keir's dad managed to order … Continue reading PKU Low Protein Waffles
Borek (Potato Parcels)
'Borek's are something I grew up eating and it has a special place in our kitchen. Keir's sister adores them. Borek is a filo pastry bite which typically is filled with spinach and feta cheese, but my mum also used to make a simple potato filling too. You might have heard of spinach version with … Continue reading Borek (Potato Parcels)
Low Protein Cheesy Pizza
It's Friday and Keir was asking for Pizza for dinner. I was feeling a bit adventurous and thought I would try to make a really cheesy pizza for my little man. Keir was pretty excited to help. I mixed little bit of mayonnaise into grated low protein cheese (violife) and chopped spring onion as. The … Continue reading Low Protein Cheesy Pizza
PKU Chocolate Birthday Cake
We made a chocolate cake for Keir's birthday this weekend. Everyone enjoyed the cake at the party and couldn't tell the difference from a ordinary chocolate cake. I picked a recipe from one of Nutricia's cookery workshops that we attended. It contains exchanges, please double check the exchange value of your ingredients when baking. My cake had … Continue reading PKU Chocolate Birthday Cake
Sewing – Electronic Scale Cover
I've been wanting to make a cover for Keir's electronic scale for a while. Like all PKU mums, I carry a electronic scale in my handbag all the time for weighing out Keir's food on the go. I felt it needed a cover to protect it from dirt getting into tiny grooves around the buttons any … Continue reading Sewing – Electronic Scale Cover
Low Protein Chinese Dumplings
We made steamed Chinese dumplings for the bonfire night. I made up low protein ones for Keir as he was getting very excited about ours being cooked in the bamboo steamer. How could we leave him out of the fun! So I improvised the recipe and made it PKU friendly. We served sweet and chilli … Continue reading Low Protein Chinese Dumplings
