I hear from lots of parents with children with PKU, one of the hardest thing that they have to deal with is when their children refuse their supplement. This has happened to us too and it was very stressfull. I wanted to talk about our experince so hopefully it will help others. Keir, around age … Continue reading Refusing PKU Supplement
Kids are counting down the days for Christmas and so excited, I think they are going to pop! I will be prepping the PKU Food for Keir this week. My husband is in charge of the Turkey and the veg. I made a quick Bake and Make List today for Keir's Chrismas Food. Bake some PKU … Continue reading Christmas with PKU
I wanted to put together a family lunch which we could all enjoy together and was PKU friendly. It was nice to put all of the food in the middle of the table and allow Keir to just help himself for any of the food without any need for weighing. He had a petit filous … Continue reading Family Lunch
We have tried out a new Low Protein Cookie recipe from Fate Special Foods. These cookies were very simple to make and they tasted divine. They had a lovely chewiness in the middle, similar to a honeycomb texture. No crumbling either. This recipe uses golden syrup which gives it a delicious depth to it. I … Continue reading Scrumptious PKU Cookies
We have tried various PKU flat bread recipes to make our low protein version of wraps. I think we finally found the recipe that works really well. This one had the perfect texture as it was flexible enough to roll with fillings inside. We served it with a spread of houmus, grated carrots, cucumber and … Continue reading PKU Tortilla Wrap Recipe
I had mentioned in one of my previous posts that Keir chose a fabric for me to make him a rucksack. I have finished it!
I always keep a couple of Low Protein Cake Mixes in the cupboard so I can whip up some cupcakes quickly for Keir if I need to. In the past I tried, Loprofin and Fate Cake Mixes. I found couple of issues with both. I tend to get caught out as Loprofin Cake Mix needs … Continue reading Taranis Cake Mix Review
As Keir will be starting school in September, we have started conversations with his new school. Naturally, we are very nervous about management of his diet at school as he is very young and will need lots of help. The SEN co-coordinator of the school has arranged a meeting between us and the school chef. … Continue reading Talking to School about PKU
We went to a music festival this weekend. Keir really enjoyed staying up pretty late to listen to the music. His preference is very clearly rock music! To make life as simple as possible we took food for him and had in our mind some substitutions if they were available from any of the food … Continue reading PKU and Camping at a Music Festival
Keir has turned 4 earlier this year and he will be starting school in September. We have been busy trying to prepare for school. We met his school to discuss his condition and his PKU diet, and he had a preschool assesment at GOSH. I can't wait to choose his uniform with him, his first … Continue reading Growing up
