PKU and Camping at a Music Festival

We went to a music festival this weekend. Keir really enjoyed staying up pretty late to listen to the music. His preference is very clearly rock music! To make life as simple as possible we took food for him and had in our mind some substitutions if they were available from any of the food … Continue reading PKU and Camping at a Music Festival

PKU Meal Ideas for Schools, Restaurants, Family…

Although we have to heavily rely on the specialised low protein food to give Keir a well balanced diet, he can also enjoy some of the everyday foods freely. What I mean by everyday food is that the food you can purchase from supermarkets unlike low protein products which have to ordered through a prescription. When … Continue reading PKU Meal Ideas for Schools, Restaurants, Family…

PKU Low Protein Waffles

Waffles for breakfast! I announce. Keir says 'what?' 'Waffles, you will like them.' 'Huh?' he responds totaly puzzled. We picked up a sample pack of Taranis Low Protein Waffle mix at the NSPKU Conference and ever since have been searching for waffle plates to fit into our existing grill. Finally Keir's dad managed to order … Continue reading PKU Low Protein Waffles

PKU Chocolate Birthday Cake

We made a chocolate cake for Keir's birthday this weekend. Everyone enjoyed the cake at the party and couldn't tell the difference from a ordinary chocolate cake. I picked a recipe from one of Nutricia's cookery workshops that we attended. It contains exchanges, please double check the exchange value of your ingredients when baking. My cake had  … Continue reading PKU Chocolate Birthday Cake

Sewing – Electronic Scale Cover

I've been wanting to make a cover for Keir's electronic scale for a while. Like all PKU mums, I carry a electronic scale in my handbag all the time for weighing out Keir's food on the go. I felt it needed a cover to protect it from dirt getting into tiny grooves around the buttons any … Continue reading Sewing – Electronic Scale Cover