Refusing PKU Supplement

I hear from lots of parents with children with PKU, one of the hardest thing that they have to deal with is when their children refuse their supplement. This has happened to us too and it was very stressfull. I wanted to talk about our experince so hopefully it will help others. Keir, around age … Continue reading Refusing PKU Supplement

Advertisements

Christmas with PKU

Kids are counting down the days for Christmas and so excited, I think they are going to pop! I will be prepping the PKU Food for Keir this week. My husband is in charge of the Turkey and the veg. I made a quick Bake and Make List today for Keir's Chrismas Food. Bake some PKU … Continue reading Christmas with PKU

Scrumptious PKU Cookies

We have tried out a new Low Protein Cookie recipe from Fate Special Foods.  These cookies were very simple to make and they tasted divine. They had a lovely chewiness in the middle, similar to a honeycomb texture. No crumbling either. This recipe uses golden syrup which gives it a delicious depth to it. I … Continue reading Scrumptious PKU Cookies

PKU Tortilla Wrap Recipe

We have tried various PKU flat bread recipes to make our low protein version of wraps. I think we finally found the recipe that works really well. This one had the perfect texture as it was flexible enough to roll with fillings inside. We served it with a spread of houmus, grated carrots, cucumber and … Continue reading PKU Tortilla Wrap Recipe

PKU and Camping at a Music Festival

We went to a music festival this weekend. Keir really enjoyed staying up pretty late to listen to the music. His preference is very clearly rock music! To make life as simple as possible we took food for him and had in our mind some substitutions if they were available from any of the food … Continue reading PKU and Camping at a Music Festival

PKU Meal Ideas for Schools, Restaurants, Family…

Although we have to heavily rely on the specialised low protein food to give Keir a well balanced diet, he can also enjoy some of the everyday foods freely. What I mean by everyday food is that the food you can purchase from supermarkets unlike low protein products which have to ordered through a prescription. When … Continue reading PKU Meal Ideas for Schools, Restaurants, Family…