Promin Bread

There is a new favourite in our house - it's the Promin bread mix! Low Protein Bread made from Promin Low Protein All Purpose Baking Mix We got a sample while at the NSPKU conference. Having never tried it before we had assumed it would be almost identical to other low protein bread mixes - … Continue reading Promin Bread

PKU and Camping at a Music Festival

We went to a music festival this weekend. Keir really enjoyed staying up pretty late to listen to the music. His preference is very clearly rock music! To make life as simple as possible we took food for him and had in our mind some substitutions if they were available from any of the food … Continue reading PKU and Camping at a Music Festival

Sewing – Electronic Scale Cover

I've been wanting to make a cover for Keir's electronic scale for a while. Like all PKU mums, I carry a electronic scale in my handbag all the time for weighing out Keir's food on the go. I felt it needed a cover to protect it from dirt getting into tiny grooves around the buttons any … Continue reading Sewing – Electronic Scale Cover

PKU Cooking Workshop London

Today I went along to the PKU Cookery Workshop in London. There were around 15 people (parents & grandparents) as well as the dieticians and the nurse from GOSH. The workshop was run by the Nutricia team. The Nutricia Chef (he called himself a cook) gave little demonstration on how to make two basic dough … Continue reading PKU Cooking Workshop London