We always find Easter a bit difficult when deciding what to do for our son with PKU. We always prepare an easter egg hunt for both our children and try to get some treats that they both like. Keir doesn't like chocolate in any form (phew) and there isn't a great deal of choice for … Continue reading Preparation for Easter – PKU style
PKU
Promin Bread
There is a new favourite in our house - it's the Promin bread mix! Low Protein Bread made from Promin Low Protein All Purpose Baking Mix We got a sample while at the NSPKU conference. Having never tried it before we had assumed it would be almost identical to other low protein bread mixes - … Continue reading Promin Bread
PKU and Camping at a Music Festival
We went to a music festival this weekend. Keir really enjoyed staying up pretty late to listen to the music. His preference is very clearly rock music! To make life as simple as possible we took food for him and had in our mind some substitutions if they were available from any of the food … Continue reading PKU and Camping at a Music Festival
Sewing – Electronic Scale Cover
I've been wanting to make a cover for Keir's electronic scale for a while. Like all PKU mums, I carry a electronic scale in my handbag all the time for weighing out Keir's food on the go. I felt it needed a cover to protect it from dirt getting into tiny grooves around the buttons any … Continue reading Sewing – Electronic Scale Cover
PKU Blood Tests
Today I thought I would organise a box of things we need for taking Keir's weekly blood test . It has been stored in an old shoe box which has started to fall apart. We used to take blood from Keir once every other day and then when he was around 6 months old we have … Continue reading PKU Blood Tests
PKU Cooking Workshop London
Today I went along to the PKU Cookery Workshop in London. There were around 15 people (parents & grandparents) as well as the dieticians and the nurse from GOSH. The workshop was run by the Nutricia team. The Nutricia Chef (he called himself a cook) gave little demonstration on how to make two basic dough … Continue reading PKU Cooking Workshop London
FATE Original Sausages
This was first attempt to make some PKU sausages. I used the recipe from FATE Cookery Book. It was very pleasing to see my son scoffing them. He was enjoying the freedom of feeding himself very much. Here's the recipe:
PKU AND MY FAMILY 